this heart broken

It’s true, me and the pink elephant are bustin’ out of Children’s on Friday evening. This could possibly slip to Saturday, but I’m crossing my fingers for tomorrow…
Zoe

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I finally got the laptop to log onto the wireless connection in our room so I should be able to post more frequent updates.
We’re starting the process towards going home. As exciting as that is it feels overwhelming at the same time. Going home this time makes last time seem like a cake […]

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Well, on the 20th Zoe got released from ICU and sent down to the recovery floor. This means a nice room (with our own bathroom) but also that one of us has to be with her around the clock. It’s been a hectic four days…hence the lack of updates.
First, they discovered the first […]

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I know I need to provide an update on Zoe (she’s doing really great!), but I was inspired by an episode of Scrubs to step outside the box.
I remember the night we received the call from the transplant coordinator at Children’s Hospital… I was holding Zoe, Jenny was sitting in the crimson Puff Chair, […]

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Zoe got her breathing tube out this morning! She did really well overnight and so they took it out about 9:15 this morning. The amazing thing was that she wasn’t agitated at all before they got it out…she just got a little mad when they were taking the tape off her cheeks. […]

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Well, Jenny and I were so happy to see Zoe’s chest closed up, we forgot to post the good news yesterday afternoon. With all that went on today, we were a little sidetracked.
I have a picture of her from today, but I’m not quite sure if it’s suitable for the masses. If you […]

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I’ve thought about how to write this post, but I can’t really think where to start or end. I think the best thing to do is announce the sad reality, and let my emotions drive the bus. Last night, another family in the Cardiac ICU lost their 3 month old baby Alanah in […]

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Well, there is another lucky family getting a heart today, so we were moved back till approximately 3 for Zoe’s chest closure. However, the surgery scheduled for 1:30 PM was pushed back, so we’re moving up again!
I have to admit I was skeptical when Dr. Boucek told us we’d be able to close her […]

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It was a bizarre day today; up and then down. She’s still doing fantastic and the surgeon decided the plan will be to close her chest tomorrow at 1:30. Good stuff. As you read in the previous post, we were waiting to hear if Noah has the chickenpox. When we first thought […]

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More progress today…..During rounds this morning Dr. Permut (the other cardiac surgeon) further reduced her chest opening with tape……yes, you heard me. He crossed tape over the dressing on her opening to bring the sides closer together. I thought a “duct tape fixes everything” joke would have been appropriate. She also had […]

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