This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
We had a great time in Spokane and the drive wasn’t too bad; the only problem we experienced was Zoe refusing to eat during the car ride because there was just too much to look at. The drive back on Sunday was LONG but we went over the pass at the best possible time in […]
Real quick update….
Had another appointment today but we didn’t have to do labs!! Her immunosuppressant level in her blood had stayed steady for two weeks so we were able to take a week off. Her echo looked good; her heart still isn’t back to “normal” but it is getting better. Her ezcema is so bad […]
Yet another appointment at the Heart Center. Her echo looked good and her blood pressure was at a level that allowed them to mess with her meds again. They are gradually increasing one medicine (captopril) while gradually decreasing another (verapamil). They also are going to start weaning her off the lasix and are hoping she’ll […]
I’ve spent a lot of time thinking lately about where the summer went. It seems to be one big blur; autumn leaves litter my back deck and I can’t remember but one day of gazing up into their green canopy. I routinely leave my house with a 2 1/2 year old and no […]
Zoe had her central line successfully removed this morning. It was a long day but the procedure itself was surprisingly expeditious. Yesterday I spoke with anesthesia and was told the procedure would take an hour and they would have to place an IV line in her. If you remember, it took them over 2 hours […]
We had a fun Halloween. We went trick or treating around a friend’s neighborhood and boy was it cold! Noah had a great Thomas the Train costume that Paul built but he refused to wear it when we went out. Last night I told him that the nurses at Children’s asked what […]
Zoe had her clinic appointment yesterday…..there are a few things to report. First of all, she has lost the slight murmur she’s had since the transplant. When they transplant the new heart it puts it under a great deal of stress which causes swelling to occur; it takes a considerable amount of time for that […]