This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
A couple weeks ago I posted about Zoe’s purple toe…..well, it started happening a lot and even though both feet weren’t turning purple they were a very deep red and blanched when you touched them. Then, on Sunday we had an interesting thing happen. Paul was holding her on his hip while talking to me […]
Zoe went in for labs last Wednesday and they called me with the results on Friday. Her cyclosporine level (main immunosuppressant) is finally within target range again (she’s been very low since Thanksgiving). Her level was at 219 and her target range is 175-225. They also test to see how much immune system they are […]
I’d like to start this post by apologizing to my friends in Seattle.
Last night it snowed about three inches during the evening commute. Paul left Bellevue about 5pm and got home about 8pm. I usually go pick him up at the bus stop and just after 7:00 I tried to. SIDEBAR: We got a new […]
About three days ago I was going to post that I had finally found the “magic” combination that got rid of Zoe’s ezcema…..ha, ha. For about three or four days it was gone (and I wasn’t using the steroid cream) and then “pop” it came back. Oh, well.
This week was a hospital free week for […]
Last post for the day, I swear. I just get on a roll and can’t stop. Last Thursday when my mom was here and I was OUT Noah and Zoe had their first brother/sister special moment. Noah was jumping on our bed (his personal trampoline) and Zoe was watching him. She giggled at him. Beyond […]
My son still sometimes talks about the “baby in his tummy”. Recently this “baby” has morphed into a baby fish. The other night at dinner he pulls up his shirt, makes a funny noise and says, “my baby fish is coming out”. I asked him if it hurt and he looked at me like I […]
Happy New Year everyone! We’re interested to see what this year holds for our family. Last New Year’s we never anticipated what was in store for us; there’s just so much that can happen in one year.
Zoe had a round of appointments today at Children’s and after vowing to leave Noah with friends […]