this heart broken

the story of Zoe Marie

This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.

Archive for February, 2007

News Story

Saturday, February 24th, 2007

Zoe will be on Q13 news Tuesday during the morning news and again at the 10pm newscast.

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Aloha

Friday, February 23rd, 2007

On Sunday afternoon I decided I needed a change of scenery plus Zoe had no appointments, needed no lab draws or prescriptions filled all week long which won’t happen again for at least a month and a half so here I am on my tropical vacation in Spokane. It’s currently 30 degrees and snowing but […]

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Protected: Mommy update

Friday, February 16th, 2007

There is no excerpt because this is a protected post.

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Star Power

Friday, February 16th, 2007

We had our interview today with Q13 news.  It was a bit different than I expected since the woman didn’t really even ask me how echocardiography is used in her care; I’m very interested to see what they use.
Zoe was a natural; so excited to have that many people smiling at her.  She talked the […]

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Physical Therapy

Friday, February 16th, 2007

Zoe went in for her physical therapy assessment on Monday.  As I thought she is about 3 months behind in her gross motor skills development. The good news is that she has all the muscle coordination and the ability but it is being masked by her muscle tension.  Our physical therapist at Children’s is amazing!  […]

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Sunday, February 11th, 2007

Thursday’s appointment with the newscrew got rescheduled for next week…thank goodness.  The week seemed supernaturally long.  I honestly don’t remember Monday but on Tuesday Noah got a little stomach flu bug which turned everything upside down.  He woke up in the morning acting perfectly normal but when we were all getting ready he threw up […]

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Proud Momma Story

Monday, February 5th, 2007

I’m back to being cocky about her ezcema….I haven’t had to use her topical steroid cream for what feels like ages. Everyday she gets a baking soda bath followed by frequent layers of straight aloe vera followed by cetaphil cream. It’s like magic! Her skin is looking beautiful!
Zoe is so silent […]

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Thursday, February 1st, 2007

We got Zoe’s labs back and they reduced her cyclosporine level a tiny bit but also reduced her Magnesium level; instead of receiving Magnesium four times a day she will only have to take it three times a day.  They’ve also decided to try two weeks without the Bactrim because they suspect that could be […]

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