This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
Her CMV scores were low…..in fact they came back at zero. I didn’t realize this was possible and I didn’t get a clear picture as to whether they think the results were accurate or not. She’ll be retested in two weeks.
We did labs again this week with a few extra tossed in because her CMV level jumped up to 3,000. They took so much blood I may have to feed her raw meat for a week to make up the red blood cells!
Her Tacro level (new immunosuppressant) is actually where it should be so they […]
No chickenpox!!
One year ago today Zoe had her transplant and so far she’s had no rejection! Right now she’s throwing around clothespins on the floor.
Zoe went in yesterday for her checkup after starting her new medication Tacrolimus. Her lab results should come back today and then they’ll decide when they want labs done again. Dr. Boucek made fun of me because I told him that she’s had 3 teeth pop through since she switched medications (Monday). He laughed and […]
Started the Tacrolimus yesterday. The first dose went great; I got almost all of the capsule poured onto her tongue. Things have gone a bit south since. You can force a kid’s mouth open to put a syringe in because you only need one hand for the syringe but popping open a […]
Yuck. Zoe woke up Sunday with a runny nose. The good news is she’s getting much better instead of worse!
I took Zoe to her new pediatrician up in Wallingford last week. It is a very small pediatric practice with two MD’s and a nurse practitioner that is in a converted house two blocks from a very cool park. I have to confess though, my first thought when he walked in the room […]