This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
Unfortunately, the test showed us NOTHING. In order for the x-ray machine to see her swallowing mechanism, Barium has to be mixed with the liquid she’s drinking. This, of course, thickens the liquid and she can swallow thickened liquid just fine. They kept reassuring me one mixture was as thin as water but she either […]
Friday morning Zoe will be going in for a video swallow study. They will watch her swallow liquids of various thicknesses and see what her muscles are doing. Hopefully they will find a way to help with her swallowing and get her to drink more liquids.
On Sunday, September 30th the 8th annual Run for Children’s Hospital takes place. This event is held in order to raise money for uncompensated care (of which we have been grateful recipients). The hospital anticipates a need of $43 million this year to cover medical costs for families who lack insurance or whose children require […]
I haven’t written much this summer because we’ve been busy…being normal. Zoe is very close to walking, Noah has asked to drive the car by himself and life is rushing by in the average crazy pace. We’ve hit a great milestone in her care in that we have less of it. She’s down to three […]