This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
Labs looked good. Her immunosuppression level was a tad high but they’re not going to change anything. Labs again in three weeks and a well child check at her pediatrician’s office in the next couple. We’re just gearing up for Halloween here (with all our parties it will be an all week event).
Zoe passed her audiology test today with flying colors! We’ll be going back every six months until she’s three but so far there is no indication of hearing loss. She actually did very well cooperating during the test, even when they put the ear plugs in her.
We also did labs while at the hospital and […]
Saturday night Zoe took her first steps; three to be precise. We were at a friend’s house and it was late as we were gathering the kids up to go. Paul put her on her feet and acted as if he was going to grab her hands but then stopped short. One, two, three steps. […]
What a crazy week. Saturday I found what I thought was blood in two of Zoe’s diapers (one at 11:00 at night) so Sunday morning her pediatrician sent us to the ER at Children’s. Murphy’s Law; everything that can go wrong will happen on Saturday or Sunday necessitating an ER visit. Those nurses and interns […]
Zoe has had another cold for the last week plus but on Thursday night she was up screaming for about three hours with the only indication of where it hurt being a couple pulls on her right ear. She finally settled down around midnight and slept on me for a couple hours before waking […]
Sunday’s run was fun; wet, but fun. It poured the entire time we were there but the kids hung out in their plastic covered strollers and I ended up running more of the race than walking. Thanks to the Kleiners, Jack, Lacey, Wyndi, and Jenny who came out and braved the weather with us!