This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
We traveled to Ellensburg for Thanksgiving and stayed with Paul’s mom at her condo along with Paul’s sister and family (5 kids, 1 spouse and a puppy) with my mom at the neighborhood hotel. For the meal Paul’s three cousins, grandmother and uncle all joined in and most of us went to the Ellensburg tree […]
Zoe has finally kicked her walking career into high gear which means we will not have to go back for physical therapy! About a week and a half ago she just decided she wanted to try walking across the room on her own and since then she’s switched from crawling everywhere to being on her […]
Zoe is scheduled for a stress echo on December 21st (I know, the week of Christmas) but our only other option was the night of Paul’s Christmas party. The stress echo is considered a day surgery because she will be sedated so we’ll be at the hospital all day long. The purpose of this test is to see […]
Yes, I am now just posting stuff from Halloween. We got together with the transplant group for some pre-Halloween fun a couple weekends ago. One of the moms had the foresight to invite the transplant team and so Dr. B came to spoil the kids (of course). And here he is feeding her some diet […]