This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
Tuesday we went in and had blood taken, a throat swab, a viral culture (from her sinuses), a urine sample, a stool sample and various docs look at her. Most of the tests take 48 hours to 1 week to get results. We know she doesn’t have pertussis or a urinary tract […]
On Friday I was on my obligatory call with the transplant team: Yes, she had another fever today; no, her diarrhea isn’t better; yes, she’s still eating and drinking, when Zoe coughed. “Is that Zoe?” This seemingly small and unimportant event got things moving. Suddenly my transplant nurse was all action and no nonsense. How […]
We all have the crud over here. Zoe now has two colds on top of each other which surprisingly is working out well for her. Her first cold was all in her lungs but she wouldn’t cough anything up and was beginning to sound very badly when she caught cold number two which is a […]
Zoe has turned into quite the signature affectionado. She’ll sign anything.
Documents,
a hand (she’s been known to sign off on her doctor’s hands also),
her personal favorite, a book,
and my personal favorite,
the couch.
Noah never gets a post all to himself so here it is. Noah’s 4th birthday was a little over two weeks ago and we decided that since his birthday was on a 3-day weekend that took a couple important party attendees out of town we would do a family party on his actual birthday […]