this heart broken

the story of Zoe Marie

This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.

Archive for April, 2008

She’s finally stabilized her medication level so I can go two weeks before going back in!  Her weight gain has slowed considerably and her food logs showed a drop in caloric intake so her dietician increased her tube feeding by another 5oz per day.  Not exactly the direction I was hoping for.  She still must […]

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