This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
Our new game plan with getting Zoe off the feeding tube is to have me count calories after every meal and then adjust her tube feeding accordingly. I’ve been using a variety of online calorie tracking tools. The encouraging news is that yesterday she finally showed some appetite at dinner and ate a FULL MEAL. […]
Zoe got discharged on Wednesday evening even though they hadn’t decided yet what was going on. She didn’t end up needing an IV since I was able to keep enough fluids down her via her tube. She was originally admitted because she began spiking fevers over 101.5 with an unknown origin. She had a leg […]
[paul writing for Jenny]
Well,
she’s back in again. On Monday morning, Zoe decided it would be great to start vomitting. Her pedatrician saw her, and recommended she be admitted to Children’s that day. So, Jen called to tell me the good news at 3 ish, and I immediately cancelled the rest of my […]
Zoe has been gaining good weight and yesterday we started a trial reduction of her tube feedings on the condition that she drink at least 10 oz of her yogurt drinks per day. At the same time I’m starting to wean her because this seems to be the most logical time to do it; […]
to everyone who checks in here to find out how Zoe is doing. The last month has been very tiring and updating the site has seemed like a chore because there hasn’t been much progress. Zoe has continued to gain weight with the feeding tube but the amount of food she gets during […]