this heart broken

the story of Zoe Marie

This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.

Our new game plan with getting Zoe off the feeding tube is to have me count calories after every meal and then adjust her tube feeding accordingly.  I’ve been using a variety of online calorie tracking tools.  The encouraging news is that yesterday she finally showed some appetite at dinner and ate a FULL MEAL.  That’s right.  Oh yah.  I think that was her first full meal since the tube went in.  She ate all the food over the course of 2 hours but it allowed her to skip one full feeding last night! She’s getting positively chunky!  I’ll try and post a picture soon but our camera is out of commision (the euphamistic way of saying we dropped it on the ground and it broke).

One Response to “Counting”

  1. Fingers and toes crossed wishing you guys the best! You are due for a break! Zoe, girl, dig in and chow down!

    :)

    S

    ps - glad you’re home.

    Sadaf

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