This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
Sorry to leave everyone hanging regarding her biopsy results but they didn’t call until late Friday afternoon and then it was the weekend…and….and….(excuses, excuses-thanks for reminding me I needed to update this Heidi). Her rejection score is a big whopping 0! That makes it nearly two full years without rejection! I don’t have all the […]
We’re home and Zoe is getting ready to go to bed. Overall she did really well today and has bounced back fantastically. She even ate a good dinner! The challenge will be to slow her down over the next couple days while her cath site heals. She’s supposed to be subdoed for two days and […]
We’re in recovery now and she did very well even after she came out of anesthesia without us (we don’t see her until an hour after she comes out of surgery). The nurses took good care of her and braided her hair, got her a fuzzy new blanket and a new stuffed animal (of course). […]
We brought Zoe here at 6:15 and the girl was not really thrilled with the situation. She was not cooperating and actually took a swing at the nurse so when the anesthesiologist saw her he suggested giving her some meds to take the edge off before she went in the operating room so she wouldn’t […]
The pediatrician cleared her for anesthesia today so we will be checking in at Children’s tomorrow morning at 6:15am. So early but good since she can’t have anything to eat after midnight and nothing to drink after 4am. We’ll keep everyone posted.
she takes matters into her own hands. I found her “playing” in the toilet this morning and in a moment of clarity asked her if she was thirsty. “UH, HUH” she said to me. Unbelievably gross but apparently effective as I had no choice but to give her some real water. The docs have reduced […]