This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
My last doctors visit…before the birth that is! UW Hospital seems to be this massive time vacuum. I went to have an ultrasound, a quick pre-op OB visit and to meet the anesthesiologist. Three hours later……good grief. The ultrasound was okay…her fluid level is a little low but since we ‘have an evacuation plan’ as […]
Our next doctor’s appointment will be Friday.
We’ve had another interesting week….on Tuesday I decided I wanted to weigh in with the transplant expert about Zoe’s birth plan. I emailed him Tuesday and let him know that my OB’s opinion was the opposite of Dr. Lewin’s and since he would be taking over her care once she’s on the transplant list, was […]
Our next appointment is with my OB this Friday, June 23rd.
As if having a child who needs a heart transplant isn’t complicated enough……the subtleties of the insurance world is astounding. We have decided to stay at Children’s even though we don’t have any guarantees. Aetna will not agree to anything on paper before Zoe is born. I misunderstood that they had approved her transplant but […]
Still waiting to hear from Children’s as to whether a one-time contract has been agreed to with Aetna. Aetna has agreed to the first piece (that she actually needs the transplant) so now they’ll start negotiating for us to get the transplant at Children’s instead of in California. I hope to know something by the […]
I had another marathon of doctor’s visits yesterday. I started at Children’s hospital where I met with the social worker. We’re still waiting to hear whether the insurance company is going to send us to
California but the social worker and I just proceeded as if we will be here. She let us know about […]
It’s been a crazy couple of days. First of all, we connected with our insurance company and was that an interesting conversation! Apparently Children’s Hospital is considered ‘in-network’ for everything except a heart transplant; they gave me three options down in California. I spoke with them for about 40 minutes and got the details from […]
One additional update. I saw my nurse midwife on Friday and she has spoken with the high risk obstetrics group at University of Washington Medical Center and was told the hospital was not comfortable with a nurse midwife doing my delivery and that I would need to transfer to the perinatology group. The perinatologist she […]
Sorry it took me so long to post how our appointment went but we took an impromptu trip to Sequim this weekend as our final getaway.
We met with Dr. Boucek and his transplant coordinator and ended up spending over 2 hours with them (I had a long list of questions for them). The meeting was […]