This is the journey through our daughter’s Congenital Heart Defect and eventual heart transplant. When you “decide” to go down the transplant route as it is called there are certain things you find out after you sign on the dotted line.
this morning and she does indeed have a nasty virus called Adenovirus. It affects mostly infants and toddlers although Paul and I have successfully caught it (it’s much milder in adults so no fever, only cold symptoms). It is not a fun virus and the worst news is that it functions like her CMV in […]
in the ER since she seemed so much worse in the morning. Around 5:30 in the morning she was nearly hysterical and I was running through a list of things: are you hungry, thirsty, tired, do you hurt, etc? In exasperation I finally asked if she wanted to go to the hospital. She stopped crying, […]
we are waiting for some lab results. Wednesday evening (more likely afternoon) Zoe started a high fever. I wish now I had taken a video of her because I’ve never seen anything like this. Her fever was 103 and she was running around laughing and acting normal. The only reason I discovered her fever was […]
Sorry to leave everyone hanging regarding her biopsy results but they didn’t call until late Friday afternoon and then it was the weekend…and….and….(excuses, excuses-thanks for reminding me I needed to update this Heidi). Her rejection score is a big whopping 0! That makes it nearly two full years without rejection! I don’t have all the […]
We’re home and Zoe is getting ready to go to bed. Overall she did really well today and has bounced back fantastically. She even ate a good dinner! The challenge will be to slow her down over the next couple days while her cath site heals. She’s supposed to be subdoed for two days and […]
We’re in recovery now and she did very well even after she came out of anesthesia without us (we don’t see her until an hour after she comes out of surgery). The nurses took good care of her and braided her hair, got her a fuzzy new blanket and a new stuffed animal (of course). […]
We brought Zoe here at 6:15 and the girl was not really thrilled with the situation. She was not cooperating and actually took a swing at the nurse so when the anesthesiologist saw her he suggested giving her some meds to take the edge off before she went in the operating room so she wouldn’t […]
Zoe got discharged on Wednesday evening even though they hadn’t decided yet what was going on. She didn’t end up needing an IV since I was able to keep enough fluids down her via her tube. She was originally admitted because she began spiking fevers over 101.5 with an unknown origin. She had a leg […]
[paul writing for Jenny]
Well,
she’s back in again. On Monday morning, Zoe decided it would be great to start vomitting. Her pedatrician saw her, and recommended she be admitted to Children’s that day. So, Jen called to tell me the good news at 3 ish, and I immediately cancelled the rest of my […]
but a week ago Thursday (the 6th) Zoe was admitted into the hospital again. She basically didn’t eat all day Thursday and so around 4:00 they made the call to bring her in so they could put the NG tube in and monitor her weight. I couldn’t update anything on the website because when your […]